Well, this post might read a little different as Marcae isn't writing it, but I guess I will do. The last two days have been very frustrating for us because there has been no real change with our little Kate. She continues to be on the vent and the hospital has been so busy with scheduled and emergency operations that they have not been able to fit her in for another Bronchoscopy with a hard scope. We hope this will tell us what the next step in Kate's care will be. While Kate is in this holding pattern she doesn't seem to be getting better but the nurses try to keep her as comfortable as possible.
Basically, we are faced with the decision whether or not to perform 3 different surgeries because of recent problems Kate has had. 1 - A Tracheotomy 2 - A Nissen and 3- A G -tube. The last 2 go together as they both have to do with correcting her reflux, allowing her to be fed without risking her aspirating or damaging her lungs any further. These surgeries have become necessary because the doctors feel that she has Pulmonary Hypertension, which causes her heart to pump harder in order get blood into the lungs to get oxygenated, which then causes her heart to get bigger because it is working harder.
With the heart getting bigger in Kate's little chest it seems to be compromising and compressing on her airway now. Which is the reason for the first surgery, the Tracheotomy (trach). This is all very frustrating for us because all the problems seem to be interrelated and knowing what this could mean for how much time she might spend in the hospital really isn't exciting for us to realize, in fact it is very discouraging. But we continue to see how Kate fights to get better and it gives us hope for the time when we can bring her home again.
The plan for tomorrow is to squeeze her into the operating room's busy schedule to take a look at her trachea so we can decide what she needs first. Hopefully this will happen tomorrow so that we can get things scheduled and allow Kate to heal so that we can get her home as quickly as possible. We really appreciate and are thankful for every one's thoughts and prayers for our little family. I hope you all know that we feel them boost our spirits in times of trial. We continue to hope and pray for the time when we can have Kate home without any medical equipment and be able to just enjoy her.
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