Day 4....

Today was pretty uneventful.....so that means it was a good day. We got the results back from the PH probe test, but the Pulmonologist hasn't had a chance to read them and interpret them for us, so we'll find out tomorrow. From what it looks like, she is not refluxing as severely as we thought. But, we'll have to wait and see. There's also a chance that she may be able to come off the ventilator tomorrow. Yay!!! She will be one happy girl.....that's for sure. We have our meeting tomorrow at 8:15 am. Bryan and I have spent a lot of time researching her heart condition and have come up with a list of questions that we'll hopefully be able to get answered. The frustrating thing is that there are so many doctors involved in Kate's care that we get a lot of differing opinions. So having all of us together in one room will be very beneficial.

Kate continues to be the sweet, happy, patient girl she has always been. I can't even imagine what she must be thinking....especially with all of the tubes she has and having her hands restrained from trying to pull them out. It's a good thing that she won't remember any of this.

"Will someone please do something with my hair??"

I'm sure it gets pretty boring just staring at the ceiling all day, so we were able to utilize the overhead light by hanging her favorite doll from it. She gets so excited that it puts her right to sleep :)