This past week has been very draining for our family, both physically and emotionally. I've hesitated posting a blog, as not much has changed in the last couple of days. Kate is very sick and we can't seem to figure out what is causing her little body to react this way. Kate has been tested for ALL viral infections as well as anything bacterial, and everything, so far, has come up negative. Last week, she was placed on a machine called an Oscillator, which is a different kind of ventilator, but breathes for her giving her over 500 small breathes per minute. The purpose for being on this machine is to help open up her lungs and oxygenate them. The hard thing with being on the oscillator, is that she has to be completely paralyzed and sedated. She has been like this since Friday, so it's been really hard being up here, especially when there is nothing we can do for her. Again, it's a very hard situation, as we are just as much baffled as her doctors. Right now all we can do is wait and hope that whatever is ailing her little body with work itself out. Kate is a little fighter, but she definitely likes to take her sweet time recovering, so we are not quite sure how long she is going to be here.
On a lighter note....Kate had some special visitors yesterday.......Ronnie Brewer and Paul Millsap from the Utah Jazz along with the rest of the Jazz team, came to Primary's and visited with the kids here in the PICU. Bryan was a little bummed that he wasn't here when they came :( They had their picture taken with Kate and autographed a basketball for her. Obviously, she wasn't aware that they were there, but I'm sure when she gets older and looks at these pictures she'll be like, "Mom, why didn't you at least have my hair curled?"
GO JAZZ GO!!!!
Last night, we tried putting Kate on her tummy to see if that would make any difference with helping to open up her lungs. We all know that Kate HATES "tummy time", so this is the only time you will see Kate having "tummy time" and not throwing a fit!! It was also a perfect opportunity to get some curlers in her hair. The nurses were joking that it looked as though Kate was just relaxing at a spa and getting pampered.....hardly.
Last night, we tried putting Kate on her tummy to see if that would make any difference with helping to open up her lungs. We all know that Kate HATES "tummy time", so this is the only time you will see Kate having "tummy time" and not throwing a fit!! It was also a perfect opportunity to get some curlers in her hair. The nurses were joking that it looked as though Kate was just relaxing at a spa and getting pampered.....hardly.
9 comments:
That's neat that the Jazz stopped by and Kate looks so cute with those pig tails. I can't believe how long her hair is. You are in our prayers.
My heart goes out to you. We are thinking about you and your sweet Kate.
Love
Lindsay Bailey
Marshall and I are thinking about your family and you are in our prayers.
that is so cool about the jazz dave would be sad to if he missed them coming around. I love you guys and my heart goes out to you. ps i am going to write you an email.
Oh sweet Marcae. I am so sorry. Afton has been sick this week and I was feeling so picked on that I couldn't do anything for her, but really I have no comprehension of what sick is. You are amazing and we are praying for you guys every moment of every day. Thank you for the update. You all are troopers and we wish nothing but the happiest of holidays for you. Hopefully things will get better really soon so life can get back to normal. Love you guys. Are thoughts and prayers are with you.
She is such a beautiful little girl!! I love you and we are definitely thinking of you, bryan, and kate. Our fingers are crossed!
Get well soon, Kate! We're cheering for you. That is so nice that the Jazz players stopped by. Kate is hanging out with superstars! Sure love you guys.
Marcae,
We love reading your blog updates all the time. We hope that Kate gets better soon! We hope you and your family have a wonderful christmas. Maybe we can get together sometime when she's out of the hospital. Good luck this week. Our thoughts and prayers are with you.
Kesha & Nick Scott
You are all in our prayers, and thoughts everyday! You are such a cute mom to make sure that no matter what kate is going through she can never complain about the way she looks! She is a sweetheart!
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