Just hanging out in the hospital....we're kindda bored!
Kate got a little break from her mask. We think she's much cuter without it : )We are tired of being here. This has been a long 4 weeks. When Kate is asleep, there's not much for us to do. The last couple of days, she's been on a schedule of sleeping during the day and awake throughout the night. She is such a sweet, patient baby, but she is tired of being here as well. It breaks our hearts because the mask she has to wear has caused sores on her face. We've been able to take her off the BiPAP to give her a break from the mask. She does really well on blow-by oxygen, but gets quite tired after awhile. We're still not 100% convinced that she needs a Tracheostomy at, as she has had some really good, hopeful days. It's just a difficult decision for us to make. At this point, we still want to give her a few more days to prove herself. Therefore, she most likely won't go in for surgery tomorrow.
3 comments:
Hey! I'm so glad that you finally got to hold her. That would drive me insane, but it's not like you have much of a choice. Nate and I are scheduling tonight and so I'll call you with some possible nights I can come up to see Kate and get our pedicures. I'm glad the Bipap is working for Kate!
She looks so great without the mask :)!! I am glad you took a picture.
Two things: My dad's wife works at Primary Childrens Hospital so he wants to come visit you guys. Just to say hi. If you remember, he is kinda loud and silly, but has a good heart :)! Keep your eye out for him...
Also, Is Treo married to Nolan? I went to high school with him! My sister and I were freaking out when we saw the 4th of July picture with him in it. What a small world!!
What a little trooper. She has been through a lot, and so have you... but you still seem to smile through it all. Glad you were able to hold her. You look great by the way... whats your secret to getting so skinny?
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