Back to Primary's AGAIN!

Well, unfortunately Monday afternoon brought an unwelcome change for us. Kate has continued to have coughing, choking and throwing-up spells and our pediatrician wanted us to check her back into Primary's. He wanted to get a bunch of tests run and make sure her heart is still OK and find out why she seems to continue having these spells, which are tough on her healing body.

While going through these tests she has been doing really well. They x-rayed her chest to see if her heart has increased size which is a sign of stress and heart failure. The good news is her heart was pretty much the same as it has been post surgery. The x-ray did show that she has some fluid in her lungs which the doctors are worried about causing serious pneumonia, or sickness from some type of virus. After taking her blood and running the necessary tests everything came back negative, so she isn't necessarily sick either.

Basically, the problem is stemming from her feeding and either issues with reflux or how she swallows. Before the surgery Kate was steadily improving in these areas and we were excited to hopefully pull her feeding tube out post surgery quickly. We think this will still happen, just not on our timeline but Kate's timeline. For now we are going to help her get stronger without dealing with the choking, coughing and throwing up by limiting or eliminating feeding Kate from a bottle for a few weeks until she becomes stronger and can do it correctly without aspirating the food into her lungs.

The good news is, Kate has been Smiling at us, responding to us and playing with her hands much more since Sunday. She seems to be getting back to the old Kate before her surgery. We are very excited to see this and know she will just get stronger and stronger. Thank you again for all your prayers, thoughts and concern for our family. We love hearing from all those who call, we hope to see you all soon.