Kate had her Echo Cardiogram today. It was quite an ordeal, as she had to be sedated for a couple hours. But, everything went great. We received some interesting news though. After reading the Echo Cardiogram, the cardiologist made a new diagnosis of Kate's heart condition. They originally diagnosed her with "Tetrology of Fallot" but have come to realize that she actually has what is called "Double Outlet Right Ventricle" or "DORV." It's quite similar to Tetrology of Fallot, except her pulmonary and aortic artery both come out of the right ventricle. This whole heart stuff is so confusing to me, so I have included a website that explains the condition in more detail.
http://www.chw.org/display/PPF/DocID/26514/router.asp
Anyway, they will plan to do the same type of surgery as planned before. Basically, they will use a "patch" to do the repair. She will, most likely, have to have another surgery down the road. However, if all goes well, Kate probably won't have to have another surgery for at least 8-10 years. The cardiologist mentioned that she may have to come home on oxygen for 1 -2 months. But, was quite optimistic that she may not even require oxygen by the time she is released from the hospital....we're keeping our fingers crossed. We're down to 2-weeks from tomorrow (Thursday). It's amazing how time flies. I think Bryan and I are finally mentally and emotionally prepared for this, but are still really nervous. We know that everything is going to go well!
Oh, Kate is now up to 11 lbs. 14 oz. I thought for sure she would be over 12 lbs. by now, but we had to stop feeding her at 2:00 am this morning (because of the sedation). However, we got up and noticed that the feeding tube was on and SOMEBODY.....okay it was me.... forgot to connect it and so our carpet got a nice soaking :) So, Kate hadn't been fed from 11:00 pm until noon today. I tell ya....we may get this whole parent thing down one of these days!!! Dr. Pulver was very encouraged by her weight gain, so we felt good about it!!! She is really starting to chunk up. It's all in her legs though. I have never seen such chubby thighs.
We are planning to do a fast for Kate prior to her surgery, so we will inform you when that will be. We love and appreciate all of you and your concern and prayers for Kate! She is truly a special girl and we are so blessed to have her.
http://www.chw.org/display/PPF/DocID/26514/router.asp
Anyway, they will plan to do the same type of surgery as planned before. Basically, they will use a "patch" to do the repair. She will, most likely, have to have another surgery down the road. However, if all goes well, Kate probably won't have to have another surgery for at least 8-10 years. The cardiologist mentioned that she may have to come home on oxygen for 1 -2 months. But, was quite optimistic that she may not even require oxygen by the time she is released from the hospital....we're keeping our fingers crossed. We're down to 2-weeks from tomorrow (Thursday). It's amazing how time flies. I think Bryan and I are finally mentally and emotionally prepared for this, but are still really nervous. We know that everything is going to go well!
Oh, Kate is now up to 11 lbs. 14 oz. I thought for sure she would be over 12 lbs. by now, but we had to stop feeding her at 2:00 am this morning (because of the sedation). However, we got up and noticed that the feeding tube was on and SOMEBODY.....okay it was me.... forgot to connect it and so our carpet got a nice soaking :) So, Kate hadn't been fed from 11:00 pm until noon today. I tell ya....we may get this whole parent thing down one of these days!!! Dr. Pulver was very encouraged by her weight gain, so we felt good about it!!! She is really starting to chunk up. It's all in her legs though. I have never seen such chubby thighs.
We are planning to do a fast for Kate prior to her surgery, so we will inform you when that will be. We love and appreciate all of you and your concern and prayers for Kate! She is truly a special girl and we are so blessed to have her.
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