Welcome Home

Well, the day finally arrived. Kate came home with us on Tuesday. It was such a great day, but we were both a little nervous. Her first ride in the car was great. In fact, she slept the whole way home. Kate has been doing good and has adjusted great!!! We are so happy for her to be home. The first night was a little crazy......she was up all night!!! That combined with the beeping sounds of the monitor....let's just say that we were both very exhausted the next day. But, she stayed awake all day Wednesday and slept the entire night. We finally feel like we are in a routine now. Kate came home on oxygen as well has an NJ tuber(feeding tube into her intestines). The doctors feel like it is too much of a risk sending her home with a feeding tube into her stomach as she still refluxes quite a bit. We are able to feed her a bottle twice a day, depending on how interested and awake she is. So far, she has done pretty good. Each feeding is only about 1/2 ouce, so it's not much at all. She seems to really take to it well.
As for now, Kate is scheduled to see her pediatrition tomorrow. It will be nice to start seeing just 1 doctor from here on out. Also, she hasn't been weighed since Monday, so it will be fun to see how much she has gained. It's amazing to see how much she changes from day to day. She is scheduled for her surgery on the 18th. We are still unsure if we are going to do the Nissen surgery (for reflux). We have had conflicting opinions from various doctors, so it is basically up to us and what we feel is the best for Kate. That is a hard position to be in, but we are praying every day that we will make the right choice. She will still have surgery to have the g-tube put in along with the prosthetic devise attached to her cleft pallet. It is so hard for a parent to see your child have to go through all of these trials at such an early part of life, but know that she is going to be blessed. She is such a little sweetheart and we are so blessed to have her. We have also been blessed with such awesome friends and family and appreciate all the phone calls, visits, meals, gifts and most of all PRAYERS.